Kyler was born, undiagnosed, with a severe heart condition called Hypoplastic Left Heart Syndrome (HLHS). Before Kyler was 3 months of age he had endured 3 open heart surgeries, 2 strokes, a g-tube placement, 2 stomach surgeries, 2 heart caths as well as many tests and other procedures. By the time he was 5, the caths and procedures will have more than tripled and he added another 2 open heart surgeries to the 3 previous ones.
He was diagnosed with global developmental delays as well as pulmonary hypertension, cerebral palsy, mild mitral valve regurgitation as well as other things. However, Kyler lived life with a smile on his face and love in his heart.
When Kyler was 9, he was diagnosed with a life-threatening condition called Protein Losing Enteropathy. Basically, the series of corrective surgeries the doctors did on Kyler’s heart was now taking a toll on the rest of his body. His heart was doing well but the lack of blood flow to the rest of his organs was causing his bowels to leak Protein. As you all know, your body NEEDS protein to live, build muscle, keep muscle tone, etc. Despite Kyler’s heart doing “well”, he needed a heart transplant to save his life. In November 2016, Kyler was placed on the Heart Transplant List.
On March 23rd, 2017, we got “THE CALL!”On March 25th, 2017, at approximately 2 am, Kyler’s donor heart started beating inside his chest. We found out a few days after transplant that Kyler had suffered a significant brain bleed during surgery, while on the heart/lung machine. It was causing serious mental issues, like wicked meltdowns and serious depression. After enduring everything he had, my son didn’t want to be alive anymore, he asked to die daily. It absolutely killed me inside.
After a visit to Kyler’s pediatrician, the topic of a service dog was brought up. With much thought and discussion, we decided that it would be an amazing thing to do and a trained dog could help Kyler, not only with balancing and walking but with his meltdowns as well.
We are asking for donations to help aid in the costs of obtaining and caring for a service dog for my amazing son. Anything helps!
Thank you for reading about Kyler and visiting his page. Please share and help us to get the word out. You can also follow his journey on Facebook: Kyler’s Kick A$$ Journey with HLHS