Frankie, DB & Jess...
I'm writing you in hopes that you will take a minute to learn about my amazing brother-in-law, Creighton Rider who was diagnosed with ALS 7 years ago. We formed a cycling team "Creighton's Riders" that started with just 11 people who wanted to join at the time the 2nd Annual Saints to Sinners bike relay back in 2011. We rode 520 miles from Salt Lake City, Utah to Las Vegas, Nevada at the end of July to raise awareness and money for ALS. Our team has since grown over the last 3 years from just the original 11 riders to now 65 riders who just completed this same relay 2 1/2 weeks ago. I wished I had known more about this ice bucket challenge before our relay this year because we would have gladly finished off our 32 hour journey with buckets of ice water poured over our head at the finish line.
Since his diagnosis he has finished off a bucket list item of hiking all of the 29 highest peaks in Utah, he has completed the Saints to Sinners relay 4 years in a row, he still skies and continues to be as active as he can....and in his words continues to "live til he dies". I would give anything to bring more attention to not only this horrible disease but to him as well. He unfortunately has lost all function of his arms and hands and it has now started affecting his neck & tongue muscles, which in turn has affected his speech. But while he still has the ability to still communicate, albeit a bit slurred and a bit slower, he has a great message to share and would be a great communicator to share and spread the story of ALS just like Pete Frates and his friends that started this Ice Bucket Challenge. We have all enjoyed watching all the celebrities take on the challenge and it’s been absolutely amazing to see how much money has been raised in such a short amount of time.
Creighton and his wife, my sister, Lisa would make great spokespeople for this continued cause. ALS has not slowed them down, they continue to travel, ride their recumbent tandem bike, hike and enjoy the time he still has in every way possible. They live life to the fullest and take each day and makes the most out of it. We got together as a team/family to do our Ice Bucket Challenge on Monday and was fortunate enough to get all of our local news stations to cover his story.